Helpful Web Sites for Autism and Genetic Disorders

By: Mai Nguyen

You can find a wealth of information online about autism and genetic disorders. To help you learn more — without becoming overwhelmed — we've chosen trusted Web sites that cover these complex topics in an easy-to-understand way. You'll find screening options, how to access state and federal resources, support group information, and more.

 

Alfi's Syndrome:

Chromosome 9P Network
This is a worldwide support group for those with Alfi's syndrome and their families.

 

Autism:

Autism Society of America
The ASA has more than 120,000 members and nearly 200 chapters nationwide. The site features a directory of local autism resources.

 

Centers for Disease Control
This comprehensive resource offers screening options and state and federal resources for families.

 

Mayo Clinic
It features a concise, easy-to-understand introduction that includes a list of signs and symptoms.

 

National Institute of Neurological Disorders and Stroke
You'll find contact information for government, community, and research organizations. It also offers articles in Spanish. Its highly clinical sections (journal articles, for example) offer a slightly more challenging read.

 

Genetic Disorders:

The American Academy of Family Physicians
The Q&A format covers the basics of what you need to know about genetic testing.

 

Medline Plus
This thorough overview of genetic disorders goes beyond the basics. It includes research, tutorials, and a related section on newborn screening.

 

Originally published in Wondertime magazine.

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